Swedish Genes? Ancestry and Ethnicity in Human Genetics Research

Abstract

Underpinned by the rapid advancement in gene sequencing technologies, there has been an upsurge of genetics research that focus on genetic differences and make use of racial, national and ethnic categories as proxy for genetic ancestry. This project focuses on how methodological, translational and ethico-political matters are dealt with in Sweden-based human genetics. The primary aim of the project is to explore how national, ethnic and racial categories are defined and made use of in genetics research with a particular focus on research that either is produced in a Swedish academic context, or focuses empirically on Sweden. By comparing three fields of human genetics secondary aims are to examine possible tensions between basic science and clinically oriented research, and discuss possible implications for clinical practice and pharmaceutical commerce. A key focus in the project is to situate the discourses on race and ethnicity in our empirical material in a broader discursive/material terrain. Methods include interviews with key researchers, participant observations at research meetings and analysis of published results and other written materials.

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